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Friday, 6 December 2013

So on Tuesday I went to my psychiatrist and I was given a prescription for Melatonin, which I took a few years ago as an over the counter drug with great effect for a short while. Afterwards I walked ahead to a book store (where I saw a really cool book called the Shadow Hunter's Codex for those of you who are into Mortal Instruments (as I have been for years)) while Mum got the script filled for me. To be fair, my Mum is amazing, she gets my prescriptions right every time... except for this one time. Mum came back with Circadin. Which I remembered the good Dr specifically saying that she would not put me on. While this is Melatonin, it is a prolonged release type and the Dr said that this wasn't a good idea as it probably would make my already difficult mornings impossible, as it would make me even more drowsy. So we went back to the pharmacy and it turns out we have to go to a specialist pharmacy called a "compound pharmacy" where they make up their own pills. So now we have to go find one of those near our house so I can get to sleep and start to have a normal life again.

But anyway, the count down begins till Christmas as the temperature rises along with Christmas trees and lights. Who can wait for the joy filled day that Santa comes and the ABC plays the Dr Who Christmas Special? I certainly can't!!

So while I was I Bowral to see my psychiatrist I got to go to this amazing restaurant called "Wild Foods". If you are Coeliac and in the area (or even if you are just in the area) I would recommend it most highly! It has wonderful open-faced burgers and beautiful velvet cake, all gluten free (their menu comes with gluten free options for most things if the actual food item itself isn't gluten free, including some lovely bread). It has BYO for adult people and smoothies and milkshakes for kidley winks.

So, lessons learnt:
1. ALWAYS check your prescriptions, if they aren't filled properly then go back and talk to your pharmacist, they can always fix it for you.
2. ALWAYS listen to your Dr when they talk to you about your prescriptions, if you hear something that later makes you think your prescriptions may be filled wrong then go back and check with your pharmacist, that is what they're there for!!
 3. ALWAYS be on the look out for good cafes! They can change your outlook on a day and a good slice of cake always makes those long trips to see specialists worthwhile when you feel drained. 

So I leave you with my words of wisdom and go off to find a place to take a highly medicated kip.
Until next time my fellow travellers on life's twisty turny journey!
Night!
Nell

Tuesday, 5 November 2013

Asperger's Syndrome

Hey!

I don't know how many of you have heard of Asperger's or its sibling Autism, but they both fall under the label "Autism Spectrum Disorders". If you like, think of it as a line, with Autism down one end and "normal" down the other. Everyone is on the spectrum somewhere, but for some people where they are on the spectrum makes normal, daily life difficult to deal with.
(This is not my image, full credit goes to the author of the blog A Thinking Person, a.k.a. Cogit8R. You can visit their page about Autism at: http://athinkingperson.com/2010/04/24/are-we-all-on-the-autism-spectrum/)
 
 
I personally was diagnosed this year as having Asperger's. That makes me one of a few, girls with Asperger's are less common than boys with Asperger's. That's not to say we aren't out there, there are some very high profile women with Asperger's Syndrome, such as Temple Grandin, who has written books and helped make movies about life with Asperger's. (This is the link to her Wikipedia page for those of you who want to know more about this inspirational woman: http://en.wikipedia.org/wiki/Temple_Grandin.) "Aspie" girls are not typically thought of when the word Asperger's is mentioned, a boy with an obsession for cars, trains or computers, who happily spends hours talk or playing with his object of choice and is brilliant at maths is the stereotypical image (I'm not saying that all boys who like computers and are good at maths are Aspie!). However medical experts are now finding that girls who have an interests in literature and the arts could also be showing signs of Asperger's (again, that's not to say all girls who have an interest in the arts have Asperger's!). This interests me, as it is yet another sign that my diagnosis is correct, as I am told that I am a great story writer.
 
Finding out that I have Asperger's is a step towards understanding myself and my place in the world.
I will be sharing my stories with you, now acknowledging my unusual Aspie nature!
 
Keep smiling! :)
Nell.

Sunday, 28 April 2013

Hi

So, I'm no good at introducing myself, but I'll give it ago. I'm Nell, I'm in high school in Australia. I love reading, cooking, rollerskating, writing stories and poems, my friends, my cousins, sometimes my brothers :P and my parents. I was diagnosed with coeliac disease 10 years ago, and have seen the improvements in food labelling brought around by awareness of food allergies and intolerances.

I was told I had depression last year and have struggled with coming to terms with this. I am on medicine for depression. At the same time I was also told I have "psychotic symptoms". Basically I hear voices, but with medicine those voices have gone away! YAY! This means I can actually sleep at night and my fiery temper has improved dramatically!

It's never easy being told that you have an illness that is life changing. I have had two of those moments in my life, but I am not ruled by them. Sure I have to take medication on camps and sleep overs, and sometimes I have to bring my own food to camps, sleepovers, parties and other such things, but my life could be a lot worse.

I promise to try not to complain too much! Though I may use this as a vent sometimes, I just want people to know that these illnesses are not the end of the world and they can be managed! :)

So have fun and keep smiling,
Nell